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Harnessing Evidence and Experience to Change Healthcare Culture: A Guiding Framework for Patient and Family Engaged Care

Dr. Susan Frampton
CEO, Planetree

Patient and family engaged care (PFEC) has been identified as a cornerstone of the national strategy for delivering healthcare that results in better health at lower costs. But despite efforts to make PFEC a predominant feature in all healthcare interactions, it continues to be an aspirational aim. And so it will remain in the absence of 1.) clear direction on the specific, high impact elements necessary to create, sustain and measure a culture of PFEC; and 2.) a persuasive evidence base compelling healthcare practitioners and leaders to change business as usual.

To address these persistent barriers, in 2016, the National Academy of Medicine convened a group of clinical and health service researchers, healthcare professionals and patient and family leaders to collaborate on the development of a Guiding Framework for Patient and Family Engaged Care.  The framework depicts how a broad array of culture change strategies work together to yield results for better health, better care, greater value and better healthcare cultures.  The multi-stakeholder development process yielded a framework that takes a broader view than previous patient and family engagement (PFE) frameworks through the inclusion of often overlooked dimensions of workplace culture, the physical environment, the quality of human interactions, communication approaches and other PFEC levers that impact healthcare culture, quality, experience and value.

The guiding framework will be presented in this session, along with the evidence in support of its various elements.  In addition, the presenter will share how the tool can be used to accelerate the advancement of PFEC, promote effective partnerships among healthcare executives and patient and family leaders, and guide broader policy efforts intended to pave the way for patient and family engaged care to become the norm in healthcare.